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“How do you explain to a blind person what a cloud is or the moon? How do you go about describing this as a parent? This is the almost impossible piece because you need the immediate early intervention.

-Huw Mainwaring
​Father of Beyond Blindness student Maxen, age 10

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Theo’s Milestones Inspire Family and Staff

June 16, 2023|

Diagnosed at birth with oculocutaneous albinism type-1 (OCA1), one of the more extreme forms where his eyes and skin have no pigment, Theo’s first several months of life were filled with uncertainty.